Saving Derrian - 13 Investigates

13 Investigates

Saving Derrian

Imagine feeling hunger so intensely you felt like you were going to die.

That's the reality for kids born with Prader Willi Syndrome, who live with a constant quest for food.

PWS is a rare genetic disorder with no cure and potentially deadly consequences.

Derrian Baker's life was hanging in the balance when his parents reached out to 13 Investigates for help. He was suffering from obesity, diabetes and heart problems. Indiana Medicaid had no treatment program available for him.

Instead of allowing Derrian to get proven therapy out of state, our team discovered a State Medicaid policy blocking access to specialized treatment for rare diseases like PWS.

In fact, we found the drive to keep Medicaid dollars in the state at all cost a losing proposition and impacting families across Indiana.

The unbending policy puts patients’ lives in danger, leaves their families overly burdened and ends up costing taxpayers more on emergency hospital visits and critical care expenses.

State lawmakers are now considering changes in order to prevent those with rare disorders from falling through the cracks.


13 Investigates: Saving Derrian update

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Tonight, investigative reporter Sandra Chapman shows us how the state's top health advocates are responding to the call to help save Derrian.Read more

State senator concerned patients with rare disorders lacking care options

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An Indiana senator is taking action on the heels of our 13 Investigates report, "Saving Derrian."Read more


Saving Derrian: State senators to review Medicaid coverage after 13 Investigates report

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State lawmakers approved a summer study committee Wednesday to review how Indiana Medicaid covers specialty care for Hoosiers with rare disorders.Read more

Derrian Baker, denied out-of-state insurance for rare condition, passes away at age 26

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Derrian Baker, the young man with Prader Willi Syndrome who was fighting for insurance coverage for out of state care, has died. He was 26-years-old.Read more

Family and friends say goodbye to Derrian Baker

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Family and friends said goodbye to Derrian Baker. Derrian suffered from a rare genetic disorder.Read more

Family vows to keep Derrian's legacy alive, renews push for Medicaid review

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Dan and Debra Baker are now renewing their fight to get better insurance coverage for those with rare disorders. They say their son, Derrian, did not have to die from...Read more