Kammy’s wish granted on Fishers park playground

(Photo: WTHR)

FISHERS, Ind. (WTHR) - Kammy Hiner has been proving the medical community wrong since the day she was born 17 years ago.

“One of the things we heard over and over again was we were told she wouldn’t live to be a year,” said Jared Hiner, her father. “She would never walk, talk, have a personality.”

“Here we are in front of a swing and a young woman from birth and for so long was told she would never, is standing in front of all of us saying ‘I just did,’” said Jared, filled with emotion. “Every single day of her life has been spent proving (the medical community) wrong.“

“They she would never drive a golf cart. She loves doing that,” said Jared, smiling defiantly.

Kammy was diagnosed Wolf-Hirschhorn Syndrome (WHS), also known as 4p-. It’s impacts both cognitive and physical development and can range from mild to severe, but it’s extremely rare.

“When Kam was diagnosed in 2002, there were maybe 600 cases ever,” said Jared.

Her father says Kam’s chromosome disorder is so rare, that doctors knew very little about it.

He said some of the most painful and difficult times over the last seventeen years were when “some of those medical professionals were trying to blame” his family. He said doctors accused their family of “malnourishment of not taking care of her because they weren’t educated on the syndrome.”

Jared said people living with 4p- are “smaller by nature, that’s just how they are. But they didn’t know that.”

That’s one of the many reasons the Hiners launched Kammy’s Kause. It one of the many ways the Hiners give back.

“When you are a parent of a special needs child, especially one where you don’t know a lot about it, hope is all you have,” said Jared.

Jared said giving back to the community in general and helping others is their way of generating hope for others.

"It is kind of like a life’s mission, it’s pretty cool, he said.”

Those who know Kammy best they say it’s no surprise her choice for Make-A-Wish was a gift that keeps on giving. Kammy wanted to build an “inclusive swing” at the playground at Roy G. Holland Memorial Park in Fishers.

On Friday, Make-A-Wish helped her dream come true.

“There’s rails to keep the child in it. This swing allows you to sit face-to-face with your child, friend, sister or brother and conversate and look at each other and laugh,” said Jared.

It’s clear to see the joy on both Kammy’s face and the faces of all the kids and adults lined up to swing with her on the new double swing set.

Jared says he hopes the swing will help build empathy among children. “Something we need more of,” Jared said.

Jared describes his daughter as "a fighter, blazing through and making a difference with each day."

“She’s the best person I know,” said her mom, Brandy Prickett.

“She sees the world in a way I wish I could. She doesn’t know hate or violence. She only knows love and joy,” said Prickett.

“What her dad and (Kammy's stepmother) Ashley have done is just…” Prickett paused as she wiped away tears. “I couldn’t have asked for anything better for her.”

The Make-A-Wish Foundation said Kammy’s wish is the 17,000th granted by the organization's Ohio, Indiana and Kentucky unit. There are 500 more kids in Indiana who are waiting for their wishes.

“Sick children who received a wish, got better and stayed better.” sadi Dave Hooper, regional board chair for Make-a-Wish. He said wishes are part of recovery.

Kammy is well-known in Fishers for her charitable work. Her father said the non-profit Kammy’s Kause has raised over $500,000 to date.

Kammy was recently nominated for Champion of the Year for Best Buddies America fundraising competition. She is the only candidate with special needs.

In a world where so many feel isolated, maybe Kammy has unlocked part of the meaning of life. To give only love, and make all feel included, and in that we give ourselves and others a better chance of defying the odds.